I had heart surgery....What the heck?

Its the weirdest thing, just over one week ago I was heading into St. Mary's hospital to have open heart surgery. Now I am sitting at home (in MN) on my comfy couch trying to decide if it really happened. I feel great. Yes, I am still a bit sore, tire out easily, and take more pills than (and some of the same pills as) my grandma, but I surely don't feel like I had open heart surgery a week ago. One day I am sending pictures home showing my family how happy I am after finishing up my first shift on my own as an RN. I couldn't in my wildest imaginings have pictured myself on the flip side of things only 5 days later.

After my first official shift on my own as an RN

I have felt ok with this whole heart surgery deal since the beginning...I thought as surgery got closer it would become a bit more real and that I might get a bit scared or something (seeing as I've watched a few surgeries and hated so much about it). However, that never happened and I decided that this would all hit me when I woke up after surgery.....but that never happened either. I am guessing that if it hasn't hit me by now, it never will. Maybe it will all seem a bit more real when I do this all over again in 15 or so years when my valve wears out. 

The night before my big date I decided to celebrate....with trip to Walmart (high class eh?), and dinner at Olive Garden. Ashley was able to get off work and come with us which was super great! Olive Garden was amazing! I had been on a low sodium diet and decided that with surgery being so close, I was willing to risk a few hours of heart failure for delicious bowl (or 2) of soup and lots and lots of salad and bread sticks.

My last dose of antibiotics

Increasing  my movie collection

Olive Garden! Yummy!

That night I received a blessing from my dad and Johnathan Bly. It was comforting to know that everything was going to be ok. I have felt that all along, but it was another great reminder.  I took my pink Hibiclens shower, squirted antibiotic goop up my nose, and talked to my friends and family back home before heading to bed for a few hours.

Fun stuff!

Friday morning came oh so quickly. I took another pink Hibiclens shower, gooped up my nose again, and headed to the hospital for my big date. We got all checked in and they led a whole group of us up to the surgical floor. It was interesting to look around and the group and wonder who in the group was having surgery and for what. Just another reminder that you never know what people are going through in life, even if you think you might. Yeah, I knew that a whole group of us were having surgery that day, but I knew nothing about what kind, what the expected outcome was, how long they had been battling medical issues...etc. It reminded me of a quote I've seen floating around pinterest..."Be kind, everyone you meet is fighting a hard battle" 

They brought us to a room where my beautiful gown was waiting. They even had a nice robe too, to protect the innocent bystanders. A nurse came, asked all the admission questions and took my vital signs. Shortly after that my buddy Tad from the pre-op area came to get me. I said goodbye to my mom, dad, and Ashley and headed off for my big adventure.  When we got to the pre-op area things started to hit me more than they ever had. I got on the stretcher, they covered me up with lots of warm blankets and a 'Bair Hugger' (only heart surgery patients get those while they are still awake! woot woot!).  While I was laying there my heart started to pound pretty hard and it hit me for a second that oh my gosh I am having open heart surgery. Then the ativan they had given me earlier started to kick in and everything was just fine. It wasn't long before they were wheeling me to the OR, 605 if I am remembering right. The anesthesiologist asked me if I was a mormon girl as we were heading out of pre-op. I answered yes and as we pulled into the OR he commented 'This is the place'. Not sure if it was coincidence or not..haha! As I was taken into the OR the experience I'd played out in my head so many times became reality. They took my robe, I moved over to the creepy lil operating table and they got to work taking my BP, strapping me in, prepping my arm for an Art-line, etc. Luckily I still had my PICC line so they didn't even have to poke me while I was awake. I remember them putting the oxygen mask on me and telling me to take nice deep breaths and I remember nothing after that. I have a pretty good idea of what when down though. I went to sleep. They stuck in an Art-line and IV. They intubated me, taped my eyes shut, put in a catheter, scrubbed me up with iodine, covered me with sterile drapes, and proceeded to cut me open and crack my chest. I would be really interested to watch an open heart surgery now. It is everything that happens after they crack me open that makes heart surgery seem so scary, but I slept through it all so maybe that why this will never hit me. 

    After surgery I went straight to the ICU, still sedated and intubated. I was hoping I would have some memory of what it was like to be on a ventilator, but I don't remember anything like that. I've got a few pictures and some video of it though.  I do remember the nurse telling me to hug my pillow and cough and I remember itching like crazy! My mom did a great job at scratching my back, arms, legs, and bum...yup, pretty sure I asked her to scratch it, and she did :) isn't she great? 

Sleeping Beauty (the sleeping part is true)

My happy button!

 I got up to the chair late Friday evening and it felt like I was awake most of the night with nausea and itching. It really wasn't all that bad though, I was expecting to be beyond miserable and most definitely was not. I remember one point in the night, however, when the nausea got super bad and I was on the verge of throwing up. Anticipating the pain of throwing up was probably as miserable as actually throwing up. I was sitting there, ready for the inevitable, when all the sudden my nausea went completely away. It was such a relief and I remember thinking about how many people had told me or my mom that they were praying for me and I believe that that was one of the many instances where I felt those prayers. Saturday morning 

I got up to the chair again and could have left the ICU first thing in the morning if the other floor would have had a bed for me. They did not so I hung out in the ICU, attempted to eat, went on a walk, ditched my art-line, and eventually got to go to another floor. I was feeling pretty good and was able to walk from the ICU to my new room.  Shortly after getting to my new room they came and pulled my chest tubes, which meant they were able to take out the catheter, and I was able to shower!

It always feels amazing to shower in the hospital. Not that the have wonderful showers or anything, but you always feel so gross and grimy and nothing beats that clean feeling a shower can bring.

The rest of my hospital stay was spent going on walks, napping, and watching movies. I could have gone home on Monday if it wasn't for my INR. I will be on coumadin for 3 months and it was taking a long time for it to get to a theraputic level so they kept me in the hospital on IV herparin until they got it all figured out. 

I got to go home on Wednesday which was fantastic. I surely don't feel like I had heart surgery a week ago and don't think many people would believe I did have heart surgery a week ago if they saw me and didn't already know. 

Before and after x-rays

In just a few days I get to head back to Utah and I am super excited. 2 1/2 months off work, Thanksgiving and Christmas off, and a month back home are only a few of the great things that have come from all of this. Not to mention I still have a great job with a whole new perspective and increased empathy for what patients go through.

Who knows what life will bring my way next? Whatever it is, I am sure it is nothing I could even begin to imagine. For now, though, I will just try and recover from life's latest adventure. 

The Fun Continues

Today was another fun and exciting day....if sitting in appointments can be considered fun. With Ashley and my mom around, it is usually quite entertaining. We met with the Cardiologist, Dr. Nishimura, this morning. He basically wanted to follow up with how things have been going since leaving the hospital. I haven't had any more fevers, chills, or night sweats, which has been heavenly. As we were wrapping things up he mentioned something about having negative blood cultures. I told him that the last blood cultures I had were in the hospital and he got a concerned look on his face. He said that he didn't feel comfortable sending me to surgery without negative blood cultures several days after stopping antibiotics. However, I still had one dose of antibiotics, blood cultures take 2 days to grow, and surgery was in two days. He said he needed to talk to the surgeon, but wanted to make sure he did what was best so there wasn't a chance of the new valve getting ruined.

Dr. Nishimura and Me

 We headed to get blood cultures, wondering if surgery would be pushed back, and for how long. We planned on waiting until our appointment with the surgeon later in the afternoon to find out the plan. While waiting for blood cultures we got a call from the doctor's secretary saying to come back up and see Dr. Nishimura after we were done. On our return visit he told us he had called the experts in the Infectious Disease department and the surgeon and both said it was going to be perfectly fine to go ahead with the surgery. I was so happy to hear that and am glad that as long as all goes well 'I'll be home for Christmas'.

I met with the Surgeon and his Nurse Practitioner in the afternoon. Dr. Pochettino went over the basics of the surgery and what he was going to do. He said there is a 50% chance the valve might be repaired, but I am just planning on it getting replaced and will be pleasantly surprised if the outcome is different. I got all my pre-op info, my Hibiclens wash for my pre-op showers, and some lovely antibiotic goop to stick up my nose, woot woot!  Things are starting to feel a bit more real now, but I don't think this is fully going to hit me until I wake up from surgery. 

A lil EKG action

Nothing facilitates roommate bonding (or bondage) like sitting at doctors appointments

Tonight Ashley and I built ourselves a little gingerbread house as part of our holiday celebrations and  my last nights of freedom entertainment. It  was a blast! I'm pretty sure the parts I did turned out a bit special, but if you don't look too closely it is quite a nice little scene. 

Tomorrow starts the big countdown and I am sure it is going to fly...but I'll be back in Utah with my family and friends before I know it. 

 

The Fun Has Begun

T minus 2 and counting.........My big date is coming up! I cannot even believe that this week is here already. I picked up my mom from the airport on Monday and immediately regressed to my 'I need my mom to take care of me stage'.  It has been going rather well and I am quite enjoying it...and I'm pretty sure she is too. It  is sure going to be hard acting like an adult again once this is all over (not that I ever really grew up anyways). 

Today started our adventure of getting ready for my big date!  It began with an MRI at 6:15 am.  I got to wear a lovely "3-armed gown",  modeled below. It was sure confusing to figure out how to put on, but quite a good idea once you get it on right...keeps ya from flappin' in the breeze.  The MRI went well. I only fell asleep and jerked awake once, which meant they had to re-do the scan because I moved. This of course happened after they came and injected some dye and told me that I was doing a great job at holding still. I was so proud of myself and then I went and messed it all up.

After the MRI, we took a quick trip across the street so they could take some blood. Then it was back to the Gonda Building for my TEE. I was not at all nervous this time, thanks to the great sedation the first time. I was informed that the doctor who performed the first TEE was known for his generous use of sedatives.  I was not as heavily sedated this time and do remember a few points where I could feel the tube moving around in my throat and I remember when they pulled it out.  However, it was still not bad. If the throat numbing goo wasn't so gross I'd get TEE's all the time ;-)

I was a bit tired and tipsy after that procedure and got to spend some time touring around in a wheelchair. I  could finally eat so we grabbed some frozen yogurt and headed to our next appointment. We met with an infectious disease doctor who basically gave us the ok from his standpoint for surgery. I got to wear another beautiful gown, but it's actually very similar to what I am wearing for my date on Friday so I don't want to give it away.

The rest of the day flew by! I ate a delicious meal fixed by my very favorite mother! I also got to make some greeting cards, which was a blast! The only good nap I got was during the TEE, which doesn't even count because I can't really remember.

Tomorrow we meet with the Cardiologist and Cardiac Surgeon. Hopefully after those 2 appointments I will have a factual idea of how this whole deal is going down. I have the scenario I've been playing out in my head for weeks, but there is always that slim chance I could be wrong. 

Friday is going to be here before I know it. This date is kind of a big deal, so I am getting a little bit restless. I am still a little shocked that I am so OK with the fact that I am having open heart surgery, but I'll take what I can and I am very grateful to feel such peace with all that is going on.

Thanks again to all my family and friends who have sent packages and cards! They mean so much to me and I am grateful for all of you and your thoughts and prayers. A special thanks to my stellar roommate who has done and continues to do so much for me and my family through all of this!  As a most wonderful friend would say, I am a lucky duck (soon to be pig).

I've got a DATE!!!!!!!

Hard to believe, I know, but I've got myself a date! It sure has been a while since I could say that. I am glad I have a date, but I have a guess this may be one of the more miserable dates I have in my life and I've had some pretty bad ones ;-) I know its going to be bad because I won't even get to eat...that's going to be rough! If this was a normal person's blog this would be an awesome post about having a date with a hottie. In case you didn't know, I'm not normal and this is going to be an awesome post about having an OR date to get my piggy parts!

My big date is December 7th! Doctor Alberto Pochettino will be replacing my Mitral valve with Wilbur's. I'm still not sure if Wilbur has been clued in to any of this, poor pig. Things are seeming a bit more real now that surgery is scheduled, but at the same time the fact I'm having my chest cracked open in 12 days hasn't fully hit me yet. I know it is going to be difficult, but I don't think I can fully comprehend what it will be like until I'm going through it. Hopefully as I am going through it I can get some good documentation of it, if people have the guts to take pictures of me after surgery. 

In other news I had an 'udderly' fantastic week. Last Friday my aunt Laurie and sister Allie came to town. This was planned before this whole heart problem ordeal, but I do have to say the timing worked out oh so perfectly. My awesome aunt brought some beautiful one piece 'cow suits' for Allie, Ashley, Elaine, and me. I do have to say, they are quite attractive and comfy! My mom and aunt fixed us an early Thanksgiving dinner on Sunday that was absolutely delicious, even in its low sodium version. My little sis did sneak me one shake of salt which was heavenly!

On Monday I said goodbye to my mom and aunt which was hard, but Elaine came to visit and my sister was able to stay so that made things much better! We got pedicures, watched movies, toured Mayo, went to the roof of the Plummer building to hear a carillon performance, and sported our sweet cow suits nightly!  It was so wonderful having my family and best friend here! So far, everything I have gone through has been more than worth it because of the people that I have been able to see because of it. Honestly though, it doesn't feel like I've really gone through anything...I'm sure the best is yet to come.

Two of the happiest people I know on the roof of the Plummer

Rocky and Me!

Puzzle time...Ashely started it, Allie and Elaine finished it....I watched :)

I've sent everyone back to Utah now. I'm sad they are gone, but I am very excited that I will be heading there myself in a few weeks! What I'll go through in the meantime is more than worth the extended Christmas vacation I will get out of it!  

Skip trying not to get squeamish while drugging her favorite sis.

Me and Mr. Rogers, a cuddly bear from Becca and Elaine! Thanks guys!

  Why iron your clothes before you get dressed when you can do it after?

What a week

Well.....I'm not too savvy with this blog bidness...thanks to my sweet lil sis who set this all up for me. I never thought I'd start a blog but given the events of this last week, now seems like a good time.

Alright, here is the scoop........

For the past few weeks I've been feeling kind of crummy and off-ish.  I've been so exhausted and when I wasn't at work I was sleeping. One day of working out would take me out of commission for a week. I was having fevers, night sweats, and just didn't feel right. Despite this, I wasn't wanting to see a doctor. With the encouragement of my roommate I got an appointment.  I'd had the appointment to see my doctor for a few weeks but I just kept feeling worse and worse and my appointment was still a week away. On Tuesday the 6th I called and tried to get another appointment that was sooner and with any provider. They said all the appointments were full.  Thank goodness I had an amazing roommate, Ashley Langford, who called the nurses line for me (which she had been wanting to do for weeks and I wouldn't let her) and because of my symptoms was able to get me in to be seen the next day.

Nothing like a huge blue mask to make you feel like a freak

On Wednesday morning Ashley (my MN mom) and I set off to the doctors office. I still didn't feel well, but was skeptical about them even being able to find something wrong. I told them my symptoms (which provided me the opportunity to wear the beautiful mask pictured above), they did their exam, and I was sent downstairs to get STAT labs, an EKG, and chest x-ray. After these tests, I went back to see the doctor. She had another colleague come in and listen to my heart and after a short 'discussion' in the hall they came back and told me I had been scheduled for an echo and to hurry to get that test complete and come back to see her. Ashley and I headed to the echo where we waited oh so patiently. After the echo we headed back to see my doctor, but we stopped and bought a giant cookie on the way back because the day was turning out to be much longer than expected. When we got back to see the doctor she came in and told me that the echo showed severe endocarditis and that she was having me admitted to the hospital. That was quite the shock...I wasn't sure what to think, so I just cried instead. Ashley and I headed to St. Mary's hospital where I was admitted to the cardiac floor. Ashley, my little angel, called my mom and told her what was going on while I continued to cry and try and wrap my head around what was happening.

I got up to my room, put on my glorious hospital gown, and was quickly met by a member of the cardiology team, followed by the infectious disease doctors, and explained to all of them over and over what had been going  on that brought me to the hospital.  While all of this was going on, Ashley had been in touch with people from the ward to come and give me a blessing and to sit with me while she went home to get some stuff for my unanticipated hospital stay.  The wonderful cardiologist came to talk to me and offered to call my mom and explain to her what was going on and I am so glad he did. She was able to switch her flight (because she was coming to see me in a week anyways) and she would be there the next night. In between all of this they drew blood cultures, attempted to put in IV's and finally succeeded, started antibiotics, drew more blood cultures, and let me go to bed. Ashley stayed the first night in the hospital with me, I'm sure she didn't get much sleep at all. We were up 3 times changing my gown and sheets due to night sweats and lab came bright and early to take more blood.

Thursday morning came and the fun started all over again. Plenty of doctors and their teams were in to see me, ask me questions, and try to figure out where this all began. At some point close to noon, I was taken to have a TEE or transesophageal echo...where they look at your heart through your throat. I saw one once in nursing school and although the patient was quite sedated, it looked like a miserable experience. I was quite scared and not looking forward to having one.  Lets just say that I am very thankful for medicine, especially versed and fentanyl  because I don't remember a thing, except for having to swallow the nasty, bitter throat numbing stuff.  I came back from the TEE quite gorked and took a nice nap. Upon waking from my nap I was visited by a billion more doctors. When one would leave and another would come in. I also met with a cardiac surgeon who laid out my options of what could be done. He said there was a small chance of mitral valve repair, but based on the echos, I would most likely need a replacement. I knew in the back of my mind what that meant, but couldn't say it so I asked the surgeon questions until I heard what I was waiting to hear... that it would require open heart surgery. That fact got added to the list of things I was unwilling to think about at the moment. Later in the afternoon Dani (my friend from church) and Ashley came to see me and brought Sudoku, word searches, and an awesome blanket. Ashley had to go to work, but Dani stayed with me until Sue Kendrick (the R.S. president) came with my mom! I was so excited to see her! I had been missing her a lot and was sure glad that she was able to change her flight and come early. I know how to get my family to come visit....even if I am a bit dramatic about it all. My mom and I hugged and cried! Nothing beats a hug from your mom! Not only did I get to see my mom, but she brought me a wonderful Toy Story bag, filled with the most wonderful things from a most wonderful friend! Thank you Elaine for the crayons, coloring books, treats, and movie! I've said it once and I'll keep saying it...You are the best!!!!!

Friday I had an MRI/MRA, more visits from doctors, and I cannot even remember what else...the whole week is really quite a blur. Saturday was by far the roughest day. I was nauseated and not feeling well at all. I guess I looked pretty bad too...My hemoglobin levels were trending downward and if Sunday's labs continued to show that trend I would have earned myself some RBC's. Sunday came and that's exactly what I got...2 Units of PRBC's, a new IV, and a PICC line! Like the TEE, I was not looking forward to getting a PICC...I told the doctors this and they kindly dosed me up with some ativan! I guess it worked because getting the PICC wasn't bad at all. After all of this was complete I felt so much better! I had so much more energy and just felt like a new person!  Sunday night, my calf started to hurt... because of the pain and slight swelling, I got myself a STAT ultrasound of my leg. Luckily, it didn't show any problems.

Monday came and I had an ultrasound of my kidneys d/t blood and protein in my urine. Then I had an MRI of my leg because of the pain in my thigh and calf. They thought they might find an abscess or infection, but it was just inflamed and they don't know why.

Tuesday was a very lazy day....just laid around. No tests, no procedures. Just visits from doctors, naps, and entertaining myself.  Wednesday was the day I was finally able to bust out of the hospital. After a week of  wearing a beautiful gown, being hooked to a cardiac monitor (affectionately named Joey), and having just about as much fun is possible while in a hospital, I was able to go home!

I've been home for a day and a half now and life is grand! I feel so much better now that I am out of the hospital. Yes, I am still tired and my heart is still not functioning properly, but I can sleep in my own bed, wear my own clothes, and do what I want to do whenever I want to. 

I will be giving myself antibiotics in my PICC line until December 6th. I meet with the cardiac surgeon on the 5th and will hopefully have surgery within a few days of that. 

This has all been quite the unexpected adventure in my life. While I think I should feel more stressed about it all, I feel so OK about all that is happening. I am being watched over. Everything worked out too perfectly to be anything but God's plan for me. I am doing well and although there are going to be some rough days ahead I know that everything is going to turn out for the best!

Thank you to everyone for your thoughts, prayers, and support! I couldn't make it through this with out the love of my family and friends!

Beautiful flowers from the Laulusa family!

Using a lil Quease Ease for the nausea

Getting PICC'd

An IV pole dance....

 Gloria, my PICC line

Me and Wilbur, the sweet pig who is giving me his heart valve
....and bacon once I'm off this low sodium diet!